so today is C-day (cold day) + 5 that Javad has been feeling sick. I think that he is finally beginning to turn around and get onto the mend. Today he was not running a fever (yeah!), he was off the vent for 45 minutes (a small start, but at least a start!), and sat up in his chair for an hour!
Sometimes it is hard to remember how important small steps are in Javad's life. It brings back memories. When Javad as little we relished in every small step. It seems almost weird how comfortable we are with how well Javad is doing, that sometimes we forget how far we have come, how fragile he was when he was young.
A cold used to throw us into a whirl, now we just give tylenol and ibuprofen and move forward.
Five years and light years ahead....
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